
My friend and I have this on-going debate: she likes on-line communities and thinks them useful and I'm dubious of them and worry they dilute and distort the power and joy of human interaction.
Ladies first: My friend considers that on-line communities -- what we called 'virtual' back in the day -- are unparalleled in their power to bring people together, to organize efforts, to maintain contacts with old or distant friends, to find new opportunities, and when needed, help.
My take: Virtual communities reduce people to avatars, emotions to emoticons, and aid to our fellows to posting a snuzzle gif in someone's blog.
Now, we are both, to some extent, right. The debate centers on the extent to which we are right. And right in the middle of this cordial and heretofore rather academic debate, reality intervenes and bites, and bites hard.
Some of you may be familiar with a DA member, Vispir:
[link] . Others may not; if you are one of these please familiarize yourself with her situation, but allow me first to give you a précis: Vispir is a young woman with a life-threatening illness, currently thousands of miles from her family with few resources and no health insurance.
There is nothing virtual about Vispir's situation: this is not some cathartic and conveniently forgotten made-for-the-masses tear-jerker about the poor cancer-stricken girl who teaches her jaded friends about the meaning of life before going to a beatific end while the credits roll and the commercials start.
This is about constant fear, near-constant pain, isolation from your family, being betrayed in your moment of greatest need by the one person you should always be able to count on; about vomiting blood at three in the morning.
There is nothing simple or tidy or beatific about this. Good wishes will not pay for doctors and blaming "The System" or referring this problem to the semi-mythical "Upstairs" will not help.
We are The System. This is not above anyone's pay grade. This is Reality and all the snuzzle gifs in the world will not solve it.
Vispir needs proper medical treatment and that costs money that she does not have. (Read her journals as to why.) Hence this fundraiser for her.
It is simple: you may visit her DA page and donate through the instructions there, or you may go to X-muse.net
[link] and purchase a membership, which will cost you as little as $5. All the revenue X-Muse generates during July and August (and possibly longer) is going to straight to Vispir to pay her medical bills. (Proofs to be furnished on request.)
Thats the deal. If you want to help and want to see X-muse but would rather not sign up, I'll give a month's membership to anyone who furnishes me with proof of a donation to Vispir of $10 or more.
So how about it? Am I right or is my friend right? Is there more to this virtual place than emoticons and avatars and lots of virtual good wishes? Can we bring people together and organize to help (and possibly save the life of) a beautiful young woman with two children?
It's up to you.
C. Owen Johnson
[link]